Contributed Article – Tor’s Story


My name is Tor, I live in the northern part of Norway, and I am the father of a 17 year old girl.  She has had epilepsy for over 9 years now.  She has tried most of the antiepileptic drugs these years, without having any major effect.

About 4 years ago, she got Vagus Nerve Stimulators (VNS).  She went 4 times a year to control and change the setting on VNS.  It helped her in the beginning, but after a while the effect seemed to decline.  My daughter has multi-focus and is born with a brain malfunction.

In April 2006 we heard about good effects with the Atkins diet.  The whole family wanted to try and we bought most of the books of the Atkins diet.  We got slowly down to 40-50 grams of carbohydrates per day.

In the middle of July, my daughter went into ketosis, with less than 10 grams of carbohydrates.  She stayed about 14 days on this level, and tested with strips (KETO-DIABUR-TEST 5000) she reached a level of 150 mg/dL.  After that, she increased to 40-50 grams per day and stayed there.

This autumn, my daughter has had positive effect of the diet, and I believe that this has reduced  her seizures by more than 50%, maybe even 60-70%.  Less, shorter and not so severe seizures.  We also have reduced one of the antiepileptic drugs, Frisium with 2/3.

In the beginning of December 2006, my daughter stayed 14 days in ketosis. The rest of the family stays on about 50-70 grams of carbohydrates per day.  We are now in the end of December, and in January 2007, we shall stop the VNS and remove the rest of the Frisium.

My opinion

Atkins diet will not help all, but we are very satisfied.  To succeed, I think the whole family should go on the diet (specially parents).  W have had no problems staying on the diet.  We eat meat, fish and chicken.  Many different sorts of egg dishes, cheese among others.

We have reduced the consumption of sugar to a minimum.

Vitamin- and Mineral Supplement

No nurse or doctor have told us about the importance of vitamin and mineral supplements.  We take daily multivitamin- and mineral supplement.  There are still many things we would like to try.  Calcium and magnesium.  Also GABA (gamma- aminobutyric acid) or the amino acid taurine.  But we are getting no feedback whether this is good for our daughter.

I still believe that traditional medicine has its place, but when it does not help, we must be looking for other methods.  Parents must try other methods in order to reduce our children’s seizures.

We also want to try music and to listen to Mozart’s K448 for two pianos in D major about 10 minutes every day.

Best regards,

Tor

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