It is not fully understood why a low carb diet is effective in managing seizures. However, some conclusions can be drawn. In your case, understanding these things may make it easier to reap the full benefits of the diet.
It is not all about ketones: Measuring ketones is an effective way to monitor the level of compliance to the Ketogenic or Atkins Diets. Some dieters do best with “large” ketones, others with “moderate” or “small”. It has been theorized that ketones somehow suppress seizures – and that theory has not been disproven to my knowledge. However, if they do suppress seizures, that is not the whole story. Many who achieve seizure control through the Modified Atkins Diet (MAD) maintain control even after losing ketosis.
Low carb diets eliminate many seizure triggers from a person’s diet: If you take a look at the list of seizure triggers, you will note that many of the most common triggers are the foods one avoids when on the diets. For most people, the diet will help them learn what food sensitivities they have, thus allowing them greater seizure control. Is it possible this is the reason the diet works? Perhaps in some. Consider this – many who do gain seizure control through the MAD later come off the diet, (after a couple years), and retain seizure control by avoiding the foods they had identified as seizure triggers. This was the experience we had with our daughter.