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If you are following a low carb diet, the Modified Atkins Diet for Seizures, the Ketogenic Diet for Seizures, or have Epilepsy here are some additional resources that may be of interest to you:

We start with two things recommended by Dr. Kossoff in his lecture to neurologists and dieticians in Canada about the Modified Atkins Diet:

(You can watch his entire presentation here)

  1. Recommended bookCalorie King Fat & Carbohydrate Counter
  2. Recommended for first month, one case of “KetoCal

For low carb products and supplies take a look at our low carb baking products and sweeteners  on the Suppliers page.

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Recommended Reading for the Modified Atkins Diet and Keto Diets.

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Ariana and Jack– A picture book about Epilepsy that helps improve the quality of life for children living with epilepsy. This sensitively told story aims to help children and families to realise that epilepsy is only one part of their lives.

Ben’s Buddies– This appealing book aims to help children, families, teachers and friends to understand epilepsy, demystify the condition and break down barriers.

Email Dr. Kossoff for a referral or information on any current studies at Johns Hopkins.

Charities for Epileptics
Each of these organizations offers some type of assistance. They have differing standards and procedures for applying for help. Please visit them for more information.

  • The Epilepsy Foundation
  • Cure Epilepsy The organization was founded by Susan Axelrod and a small group of parents of children with epilepsy who were frustrated with their inability to protect their children from seizures and the side effects of medications. Unwilling to sit back, they joined forces to spearhead the search for a cure.
  • Both CURE and PACE are very large charitable organizations that are not Epilepsy specific. Cure’s mission is to find a cure for epilepsy, by promoting and funding patient-focused research. Contact your local Chamber of Commerce or Business organizations to find a local branch. Sometimes local businesses have additional charities that they will sponsor for people in their community needing assistance.

Travel Assistance
Many airlines run programs where their frequent flyers will donate mileage for the benefit of children that need to travel for healthcare. Both American Airlines and Northwest gave us free tickets from Colorado to Baltimore, Maryland so that we could participate in the Johns Hopkins study. Getting this assistance requires some organization and diligence in finding and applying for the benefits. Of extreme value to us was a helpful and sympathetic nurse in the public health department in our county.

Webpages With More Information on Epilepsy

NOTE: Do you want to see anything else on this page? What are you looking for? Please email us with your suggestions so that we can make this site better. – Thank you.